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Old 05-16-2020, 11:07 AM
duncansheik duncansheik is offline
Junior Member
 
Join Date: Nov 2019
Location: Kentucky
Posts: 6
3 yr Member
duncansheik duncansheik is offline
Junior Member
 
Join Date: Nov 2019
Location: Kentucky
Posts: 6
3 yr Member
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Sorry I never replied back. My neuropathy never fully goes away but some days are better than other. I still have fasiculations everywhere. I appear to have some wasting in my hypothenar eminence (ulnar side of hand) without loss of function. I’ve had two negative NCS and one negative EMG. They offered to send me to Mayo or Cleveland Clinic I declined. Sometimes it feels like things get caught in my throat but perhaps that’s just allergies as I have no actual trouble passing food or drink. I never got an LP which I wish I would have to see if this is some form of GBS, but neurologists I’ve seen did not think it’d add value. Definitely whenever I do a follow up would like to see if IVIG an option.

I hope your symptoms have improved. I am blessed that all my testing has been negative but unfortunately I still have symptoms getting closer to a year to start couple months off.
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