Hi,

I have neuropathy that has spread to one foot up my entire body and trunk and is now in my hands and jaw. I've been diagnosed with mold toxicity, Lmye, Ehlers-Danlos and POTS. These may explain the increasing nerve symptoms, which seem to be progressing in spite of doing an herbal protocol for the Lyme as well as electrolytes, salt and fluids for the POTS as well as taking binders for the mold,

The Ehlers Danlos was just diagnosed at age 69 and was borderline. I think it's minor and never caused problems until the last few years, if indeed it is causing the problems.

Here's where I need help:

Every night I have horrible internal chemical releases at least twice during the night. They are similar to the POTS episodes I have all the time, except they set off all the areas where I feel nerve pain and cause an active squeezing feeling all over. I begin to sweat and my feet and legs will start burning, pulsing and hurting. Then I begin to have pains that jump all over, from maybe my jaw to my ribcage, then a knee, etc. and finally my hands, which swell up and turn red. The sweating is sometime severe but has calmed down recently.

Some nights it's not so bad and I can go back to sleep. Other nights I suffer for hours with this. It also brings on anxiety that is not related to thoughts, although anxious thoughts exacerbate the symptoms.

Now it feels like my whole spine is numb and painful. I can't figure out how the nerve pain/burning/stabbing etc. and the waking episodes are related and neither has any of my numerous doctors.. I recently saw a sleep doctor who said he had no explanation. I've seen three neurologists (an EMG showed sensory nerve damage), a cardiologist, endocrinologist, allergist, etc. I've also seen a psychiatrist, based on the opinion from my GP that I am simply anxious. The psychiatrist assured me that my symptoms are not psychological.

I had an abnormal monoclonal antibody test which my neurologist said is not significant.

Has anyone experienced this? The squeezing feeling has gone from only during the middle of the night episodes to constant, and the night episodes just set it off. The impulse often seems to come from behind my waist, although sometimes it includes a giddy feeling in the stomach.

Any insight will be appreciated. Thanks.

G