Hi Skwiss, I am a 66 year old woman who lives in Australia. After a year of health investigations, six months ago I was finally given a diagnosis of anti-MAG PN. This condition developed quickly and is considered very rare particularly in women. I also have regular blood tests for monitoring the condition of MGUS, which is another health issue I have to deal with.
With the situation of COVID 19 and my auto immune disorder, I am waiting to hear from the hospital when I can start some treatment with Rituximab. I was very interested to hear your views on the various treatments you have followed. I am struggling with this condition as my quality of life has deteriorated drastically. My walk, balance are severely effected - thankfully I see my physio twice a week which helps me to manage. I do get bouts of depression and will be seeking guidance from a psychologist. I would like to hear more on how you managed this condition.