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Old 07-26-2007, 12:45 PM
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flippnout flippnout is offline
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Join Date: Oct 2006
Location: Back forty, MO
Posts: 159
15 yr Member
flippnout flippnout is offline
Member
flippnout's Avatar
 
Join Date: Oct 2006
Location: Back forty, MO
Posts: 159
15 yr Member
Default to vicc and dream and everyone

Yes I had a sympethetomy, along with my TOS operation both done togather. I still feel the pain but it is so confusing with RSD and TOS I will say the pain is half, with the help of meds and the operations.

I sweat on half my body now, and the sun burns me so bad on the side of sympethetomy so I have to be careful, besides the RSD burning the fact I do not sweat on that side is bad so I must be careful when out in heat. My body temp is out of wack I must have it cold all the time, yet I cannot have a cold breez on affected side, winter is bad for me yet I must have it cold in my house because of my body being out of wack I've had to have AC on in winter at times, or window open. With the RSD and TOS I do not like going out with the wind an cold...see sympethetomy is wierd I know we are told not to, but yet when the choices are few and I was in such a state there where no other options for me, so what did I have to lose was my thoughts.

I have done my research of sympethetomy and found it is illigle in some countries we all must make choices with this RSD I did what I thought was right- as of now my pain is half no better yet I will take that what will happen later will I be one of the people that have the bad reaction I dont know bbut I took a chance and it is helping me somewhat. I will never tell anyone to do this it is a big step and alot can happen to you, my doc exsplained everything to me what i was in store for all complications so on and after affects and I made the call to do this.

I want to talk to others who have had this done, or to thers in my area who have RSD or TOS- it seems like I'm alone in my area a pretty big city sorry I'm private about it,to many eyes see all this, funny I'm sure what I've described they already know who it is...LOL no wonder they keep wanting me to see a shrink, yet the shrink says I'm ok LOL......

I dont remember talking about care givers? if so I wish I have kids and I have to push myself everyday to just be a dad to them,it is hard I have days I just do not want to move like we all have, but I do I get myself up the same time everyday like I was working I dont sleep much at nite but I have kids home for summer and three of them is a handfull till mom comes home to help, she is the best to put up with me at times LOL I get in my grumpy moods and just want to go and medatate to be alone with the kids it gets LOUD! so I have to find my time wich is HARD but I do it...my BETTER HALF always puts me in my place when I need wich is so true because of the emotions we all have, it seems like we get stuck in the ME's I call it dont say you dont where you start acting and thinking only about ME (YOURSELF) poor me, no one understands me,so on we all do it I know. My wife is the best she helps me, stands by me and is not one to back down she knows I try around the house and I try to go do things out of the house when I can, but I have limitations and she accepts it. So yes I love my care giver for always!!!

Sorry so long, I wish to speak to others with sympethetomy, I am alone where I'am no groups and I have never seen any one at the teaching hospital with it, RSD or TOS, I'm sure there are some where I am but not many and I am from a pretty big city with the blues.
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