You mention the emotional toll the worry/anxiety is having on you.
The emotional aspects of any condition can be overwhelming, the waiting for awnswers and the what if's..
But there are ways to calm that hyper concern down while this gets figured out a bit..

Don't let worry affect your relationships & life, enjoy life as much as you can always...

Psychological Quizzes and Tests
Psych Central - Trusted mental health, depression, bipolar, ADHD & psychology

Look up the stages of grief, if fits for health conditions also.
Stages of Grief: General Patterns for Breakups, Divorce, Loss, More