Quote:
Originally Posted by LeedsLad84
Hi everyone
Just to update, the previous week was a good one. Symptoms were overall dampened but still not fully gone.
I started on a bunch of supplements last week too (the only thing I was taking previous to this was a Multi Vit, 1 fish oil capsule and Magnesium Oxide), so will see how they do and I will of course keep everyone up to date.
Due to have a follow up with my Neuro next week as well where I am sure he'll go through the EMG/NCS results, and also blood results around the antibodies etc.
For anyone interested, below is the supplementation guide I am following atm. If anyone has any thoughts/advice, would be happy to hear as I have just come up with this myself based on the numerous posts I've read here, including Mrs D's supplementation thread. I'm especially curious to know if I am supplementing the right way round, i.e. the right things in the AM on empty stomach vs. PM with food.
AM (on an empty stomach)
1 x Wellman Original Multivitamin (I will drop this soon)
1 x Magnesium Citrate (200mg)
1 x Alpha Lipoic Acid (100mg)
1 x Benfotiamine (300mg)
PM (with food)
2 x Omega 3 Fish Oil (1000mg)
1 x Evening Primrose Oil (1000mg)
1 x Grapeseed Extract (100mg)
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Hey Leeds,
It can't have been easy for you coming on here, talking so openly about a difficult issue. A proud Yorkshire man born during the miner's strike having to admit to living in a soft, southern, big jessie county like Hertfordshire where the hardcore football team is Watford!! But joking aside, thanks for the update.
Interested to see your supplements. Surprised you're not taking a Vitamin B Complex, B6, Folic Acid, B2 all essential in my view. Especially surprised you're not taking B12. That measurement you had previously would have been affected by your tablet intake. You have to stop ingestion for 3 days to get an accurate picture. B12 is water soluble so you can't in the real world overdose. I take 1000ug of methylcobalamin daily. I prefer to take Omega 3 Algae Oil rather than fish oil to avoid heavy metals. You can also add Flaxseed and Chia seed to food to boost different types of Omega 3. I avoid Evening Primrose Oil because of its pro inflammatory Omega 6 but would like to hear your reasoning you take it. I've never tried Mg, I must admit I intended to but forgot! I also take coQ10 and Curcumin (from Turmeric) Creatine and Alpha Lipoic Acid (600mg). I've pretty much taken every supplement suggested on this site but those are the ones that I now take. I will add Mg
Quick question, are you seeing a Neurologist privately or on NHS?
Best wishes,
Atty.