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Old 08-27-2020, 03:22 PM
MidwestWife MidwestWife is offline
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Join Date: Aug 2020
Posts: 16
3 yr Member
MidwestWife MidwestWife is offline
Junior Member
 
Join Date: Aug 2020
Posts: 16
3 yr Member
Default Peripheral Neuropathy caused by MOLD

Many of the peripheral neuropathy stories on this forum sound much like my own so I wanted to share my experience in hopes that it might help someone. This is my first post. My symptoms all these years have been due to poisoning by a neurotoxin, specifically the mycotoxins produced by toxic MOLD. My exposure was from water in the crawl space of our home. This was not a "black mold" but was instead just a white, light dusting of an Aspergillus species and Penicillum on the floor joists.

I am in my early 50"s, never smoked or drank and always tried to stay active. My symptoms started out at least 10-15 years ago with fatigue and the following problems showed up along the way. All continued to worsen over time.
Numbness and burning in the soles of my feet that started advancing up both legs then
burning in palms of both hands with numbness and weakness advancing up both arms in a stocking -glove pattern.
Skin changes in my lower legs, they always felt sun-burned and "tight" .
Crushing physical fatigue, at times feeling even sedated.
Poor recovery after physical exertion.
Unexplained joint and muscle pain.
Restless leg feelings at night with charley horses in my feet and calves plus occasional, random twitchiness.
Entire body feeling as though it "buzzing" at night as I laid in bed.
Tremors. (To DavidHC, thank you for your posts on CBD oil. It was the last ditch effort to get some symptom relief right before my mold diagnosis. It has done wonders for my tremors. )
Flushes of weakness to where I thought I would collapse.
Many cognitive deficits including lack of concentration, poor problem solving and word finding, mental fatigue, memory problems.
Burning mouth and tongue.
Nausea and vomiting. Diarrhea (ER visits to replace fluids)
Vertigo and also non vertiginous dizziness, a constant state of feeling "car-sick", heart palpitations including significant episodes of tachycardia (trips to the ER).
Inability to tolerate chemical smells.
Insomnia. Chronic. Severe. Maddening.
Headaches ("Ice Pick")
Light and sound sensitivity. Blurry vision.
Prolonged healing time for injuries or no healing at all.
Environmental and food allergies (peanuts and grains are notoriously loaded with mold).
Deep depression.
Easily startled at unexpected noises.

Diagnostic work-up over the years was always neg: blood work, ekg's, cardiac ultrasounds, mri's, etc. No diabetes, no MS. I also came to the personal decision that I would not submit to any testing (taps, EMG's, muscle biopsies, etc) that would not change my outcome because afterwards the doctors still wouldn't know what to do for me. I found an integrative physician who diagnosed me with Leaky Gut as well as Multiple Chemical Sensitivities (MCS) and Chronic Fatigue Syndrome. While those diagnoses felt somewhat like a victory I was still asking "why?" for those conditions. Years of taking costly supplements, safe removal of mercury fillings, removal of every tasty food from my diet along with replacing home and healthcare products that were reduced chemical and fragrance free only seemed to make a minimal difference at best, but in fact, I just kept getting worse. Even my integrative doc started thinking I was presenting with psychosomatic issues.

My husband then started having some of the same symptoms. Subtle at first, but I would say "that sounds like me". At my integrative MD appointment in May 2019 I was adamant that there was something wrong with me and it was getting missed. (Doctors not knowing what's wrong does not automatically mean I'm crazy.) He finally said this is mold poisoning from mycotoxins. He was right. Subsequent urine testing ("MycoTOX Profile" from Great Plains Lab) showed I was loaded with a toxin called Ochratoxin A (from Aspergillus as well as toxins from penicillum). Mold toxins destroy every body system, and it explains my leaky gut/SIBO, MCS, cardiac symptoms, neuropathy (my central, peripheral and autonomic nervous systems all damaged) and about 99% of everything else that's been wrong. . In addition to the mold toxins, I had high levels of petrochemicals in my system; these are also neurotoxins that can produce the same symptoms. (Exposure from gas engine machinery in our attached garage, perhaps?) A liver study showed that my methylation process was not working so my body could not clear the mold and therefore I could not handle everyday exposures to foods, perfume, cleaners, gasoline, paint, etc.

More people do not know about mold toxicity is because widespread admission that it could cause this much devastation to a person's health would be financially catastrophic. Doctors are completely ignorant and Big Pharma, if aware, probably thinks the financial waters are murky at best until there is a general acceptance of a health issue. The real estate and insurance industries, the building trades and especially the gov't all have a vested interest to deny the problem. Acknowledgement means being liable for occupants and therefore these groups would go bankrupt due to the astronomical cost. Even new homes and buildings are not a guarantee that one can be free from a moldy environment. Look at any construction site and what do you see? You see partially built buildings standing out in the rain. Builders do not wait for these structures to dry out. No, time is money so they seal them up nice and tight and move on, leaving the perfect conditions for mold. You do not have to be able to see or smell it; it can still be behind the walls.

Many internet searches for ill-effects of mold will often result in just respiratory problems (even the Mayo Clinic - and everybody believes them, right? - reports up to 93% of all sinusitis problems are due to mold). This is not a mold "allergy". This is poisoning by mycotoxins, very powerful neurotoxins that can overwhelm and destroy the body. The few physician encounters I have had since the mold discovery have been met with blank stares. I am extremely grateful that my integrative MD finally recognized my symptoms and accurately diagnosed me. I do believe the Lord used this doctor as an instrument of His grace. How many people never get an answer?

I obviously do not know if mold toxicity is the cause for other sufferers on this forum, I just know lots of stories here sound almost identical to mine. I can post very helpful links after meeting forum requirements for new users.
Getting free from mold is an arduous trial and expensive process in and of itself, but thankfully, after 10+ years of trying to get to the root cause of my frightening health problems, we were blessed with the answer. May the Lord be with you in your journey. There is hope.
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