Good day from other end of Hell.

Symptoms you are describing is 90% me + i have bunch of other horrible stuff.

I developed severe pain, tingling, twitching,numbness sensation of warmth in the 4th month after infection, most likely COVID. The COVID long haulers groups are full of weird neuro symptoms.

Anyhow I seem to be worse than others . I am in the 7th month of this Hell. So far done lots of regular blood work - low on neutrophils ,
head MRI - waiting on results
Nerve conduction study - all good
Some sonography- all good
Reumo specialist- all good
Will push for lumbar punction

In meantime I have severe fatigue, heart palpations, post excertion Shortness of Breath, Yea, "all good''

The saddest part is I can do nothing to get my energy up- i can not excersise.
And I CAN NOT DRINK COFFEE. This is the absolute worst the few times I drink strong enough coffee, i feel alive, I have hope and energy to do stuff. Only to get hit with unbelivable neuro pain in my legs and arms. In fact the pain in legs started after strong coffee. Also the SOB is very sensitive to cofee intake.

I manage the pain by popping Gabapentin 300mg like candy.

To be honest , If I dont see any improvements insoming months, I dont see how I can live like this. I actually can not do any job. I am worthless human being.

P.S. Got here by searching neuropathy+coffee