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Old 09-26-2020, 06:54 PM
simplelife15 simplelife15 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 16
10 yr Member
simplelife15 simplelife15 is offline
Junior Member
 
Join Date: Sep 2013
Posts: 16
10 yr Member
Default It's been awhile....

A few years of doing pretty well (30 mg pyridostigmine PRN), but had a flare last week that put me in the hospital for 6 days, CPAP support and five days of IVIG. It's been slowly building since spring and finally fully hit last Satrurday.

Will be following up with my neurologist on 10/14 with the idea being to start immunosuppressant therapy. A lab came back today (prometheus thiopurine metabolites) which leads me to believe he's considering Imuran.

Anyone know if this test is a precursor to any other meds that I might start researching in the meantime? Questions I might prepare to ask when I have my appointment? Any thoughts or experiences you can share about Imuran?

Also, does anyone know why a neurologist would want to choose immunosuppression drugs instead of ongoing IVIG for treatment?
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