Junior Member
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Join Date: Sep 2013
Posts: 16
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Junior Member
Join Date: Sep 2013
Posts: 16
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It's been awhile....
A few years of doing pretty well (30 mg pyridostigmine PRN), but had a flare last week that put me in the hospital for 6 days, CPAP support and five days of IVIG. It's been slowly building since spring and finally fully hit last Satrurday.
Will be following up with my neurologist on 10/14 with the idea being to start immunosuppressant therapy. A lab came back today (prometheus thiopurine metabolites) which leads me to believe he's considering Imuran.
Anyone know if this test is a precursor to any other meds that I might start researching in the meantime? Questions I might prepare to ask when I have my appointment? Any thoughts or experiences you can share about Imuran?
Also, does anyone know why a neurologist would want to choose immunosuppression drugs instead of ongoing IVIG for treatment?
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