Hi.

I agree that we must be our own advocate. I also refer to several RSD websites but only view the information as "general" in nature. I believe that it is extremely important to have a good general physician and a specialist involved in your care in order to have the best possible outcome. I also found that counselling was extremely helpful to me when I was first diagnosed.

There was a survey distributed and completed (last year I think) by RSD victims. The questions and results can be found on the American RSD Hope site, http://www.rsdhope.org/survey/results.asp
This is the most recent survey that I am aware of.

Take care,
Miss Irie