Hey everyone
Thought I'd check in. Generally, things are improving albeit slowly. Previously I used to have a lot of odd things like feelings of wetness, hot/cold spots, etc. which seem to have subsided and it is now just generally tingling.
I am yet to have a day where I don't notice anything at all, but there are days where it is very minimal. I am not sure whether the Gabapentin is making a difference or if this is just occurring naturally - I suspect the latter as I have reduced the dosage and everything seems to have stayed largely consistent.
As I've read and been told on here, the journey is definitely 'patchy' and I am not even sure if I am recovering, but hoping I am. There doesn't seem to be any set pattern but what I do notice is the less comfortable days consist solely of prickling/nipping/pinching (mainly hands/feet) which last a second but are very transient and disappear. From the tracker I have been keeping, it does seem to be that there are largely comfortable days, followed by a flare up and a small block of more uncomfortable ones, and then back to normal with the cycle repeating. Thankfully, it does seem to be more favoured toward the better days for the moment and the flare ups seem to be less frequent than back in the early days where it was quite constant.
As I say, I have been keeping a diary of symptoms and marking them on a daily basis which I have found useful in monitoring overall progress. If anyone's interested, I've included it here:
13/10 - Legs/Gym. Prickling/pinching/twitching all over including face but not really bad. 3/10
14/10 - No gym. Barely any symptoms at all. 0.5/10
15/10 - Push/Gym. Very very light symptoms. 1/10
16/10 - Pull/Gym. Light prickling and tingling. 3/10
17/10 - No gym. Very mild symptoms. 2/10
18/10 - No gym. Mild tingling and twitching in hand, foot, knee, etc. 2/10
19/10 - No gym. Moderate prickling, mainly in the face area, but also pre-cramp type feeling in the right foot. 5/10
20/10 - No gym. Mainly tingling underneath skin. 3/10
21/10 - No gym. Tingling and prickling/pinching (transient and happened in leg and arm) felt a lot in the face. Also feels tight when it happens in the face. Happened the majority of the day. 6/10
22/10 - No gym. Mild tingling but overall better. 2/10
23/10 - No gym. Mild symptoms. 2/10
24/10 - Upper Body/Gym. Mild symptoms. 2/10
25/10 - No gym. Mild symptoms. 1/10
26/10 - No gym. Very mild tingling and twitching. 2/10
27/10 - Full body at Gym. Mild tingling and twitching. Also felt a bit of dysesthesia on the left side of my face. 2/10
28/10 - Bit of tingling and minor prickling. 3/10
29/10 - Some tingling and twitching. 3/10
30/10 - Minor tingling. 2/10
31/10 - Tingling and a bit of dysesthesia. 3/10
**Gabapentin reduced from 300MG to 200MG / day
01/11 - Minor tingling. 2/10
02/11 - Minor tingling. 2/10
03/11 - Mild tingling. 2.5/10
04/11 - Bit more bothersome tingling and prickling. Transient. 4/10
05/11 - Mild tingling. 2.5/10
06/11 - Minor tingling. 2/10
07/11 - Minor tingling. 2/10
08/11 - No gym. Mild tingling. Also felt a bit of dysesthesia on the left side of my face. 2/10
09/11 - No gym. Mild tingling and tickling under the skin. 3/10
10/11 - Long walk. Tingling and some minor prickling which was transient throughout. 3/10
11/11 - Tingling but also more prickling throughout which was happening intermittently in hands, feet, rib cage, etc. 4.5/10
12/11 - Tingling but also more prickling throughout which was happening intermittently in hands, feet, rib cage, etc. Mild twitching too. 4/10
Supplementation at present is:
Morning: Magnesium Citrate, Benfotiamine 300mg, R-Lipoic Acid 100mg, Acetyl L-Carnitine 500mg and B12 1000mcg Methylcobalamin
Evening: x1 Omega 3 Fish Oil 1000mg and x1 Multivitamin
* again, not sure if these are making any difference yet. I have been on them for about 2 months which may not have been enough time.
So I am currently experiencing that 'block' so things have been a little uncomfortable the last few days. I am also going to wean off Gabapentin totally from tomorrow.
Let me know if anyone has any thoughts or questions