Hello Anndav,

I am glad to hear the website has been helpful to you. I am sorry to hear about your recent visit to the neurosurgeon. This is why it is crucial for you to see a physician that is knowledgeable and specializes in Tarlov Cyst, because not every neurosurgeon is.

Having a cyst that size I'm sure is causing some of your pain. With regards to remodeling bone that is one of the things the cyst can cause too. I believe it is playing a partial role with my back. Over the last few months since I began experiencing realky bad pain I have noticed my back where the cysts are licated has been popping a lot. It seems like every time it pops, the pain gets worst than before. At first I thought it was cracking from the several years prior to fusion surgery I was going to a chiropractor and over time my body does it on its own from the many adjustments I have had. But I know now its not the reason.

You have good reasins to worry about the cyst being the direct cause of your pain. Please don't ignore the other pissibulities such as the SI joint and piriformis muscle. All three issues can mimic the same kind of pain.

I know its hard to be patient with physicians when you are experiencing so much pain and discomfort. I have been down this road. It took almost 4 years if going to dozens of different physicians to diagnose the ruptured disc in my back. I hope when the neurosurgeon you contacted about the cyst yoy reached out to contacts you, it will help you.

When you saw this other neurosurgeon the other day, did you ask their opinion about the SI joint and piriformis muscle?

Hang in there hun. I will be praying for you!

Best wishes,

Diamond Tiger<3