Hi Diamond Tiger,
Have not been on this site for awhile. I have found a lot of information on a couple Facebook groups about Tarlov cyst. So I’ve been reading a lot of those posts.
The neurosurgeon I had last at ccf was not very helpful at all. I mentioned piriformis and he said that is no the problem along with the cyst not causing my symptoms 100% sure. I told him the other neurosurgeon who referred me that it was was 70 cyst 30 lumbar. He said he disagrees with both areas and that it is systemic. I had 11 blood tests for autoimmune and other things all normal. I had the emg on Thursday and will see neurologist this week for results. Tarlov cyst specialist will be 1st week of January.
I hope your pain is getting better and I am praying for you.
Thanks for all your help
Anndav