Thank you Lara. I had 11 nodes removed & radiation along with chemo. I had arm & hand pain during chemo, but it was never diagnosed as anything other than " a chemo side effect" so I was surprised when the neurologist who did the emg told me I had nerve damage from the chemo ( she surmised, as taxol can cause nerve damage). I actually don't have a clue as to why the lymphadema flared after so many years - I guess cancer long term after effects are like that- they're unwelcome surprises.

The docs I've seen have told me that the nerve pain should lessen as the lymphadema swelling lessens, but there's no guarantee on that. This is uncharted waters for me & I'm finding that dealing with the 2 simultaneously is challenging to say the least. To keep the lymphadema from worsening I'm supposed to wear a compression sleeve on my arm, but that is so excruciating... I'm glad you've seen some improvement & hope it continues!