View Single Post
Old 01-29-2021, 12:00 PM
gailveronica gailveronica is offline
Junior Member
 
Join Date: Nov 2019
Posts: 18
3 yr Member
gailveronica gailveronica is offline
Junior Member
 
Join Date: Nov 2019
Posts: 18
3 yr Member
Default Neuropathy Progressing - No Answers

I've posted here previously with some odd symptoms, but my main symptoms are tearing pain when moving my left foot that refers from ankle / top of foot area down to the front of the foot.

Tinel's sign positive - under ankle (sural nerve) can tap and feel toward little toe, on top of foot down to big toe, and recently (as of the past week) terrible pain when tapping above my ankle, referred down to the top of my foot under the 3rd/4th toes.

Numbness along the sural nerve - a small dime-sized spot, but numbness nonetheless. As well as pain beneath it.

The tearing pain now coming from above my ankle is concerning to me. I've recently been walking/cycling 5-6 days a week. I also have varicose veins only on the left leg. My left leg tends to swell (it has for 15 years) in a seated position or if I'm on my feet too long - I've been wearing compression socks to fix that at work.

I emailed my doctor, who wants to see me next week to talk about the new symptom and do a thorough exam.

I've had:

EMG / Nerve Conduction - only slight fascillations, likely due to tarsal tunnel, but no worries

MRI of brain - fine

MRI of back - bulging disc / degenerative disease between L5 - S1 but no one saw any nerves being pressed

Blood work - all fine, normal SPEP, CRP slightly high, SED slightly high, no ANA markers - I have PCOS so they put my inflammation up to that (and obesity), normal CMP / CBC, low b12 (288) at one point but has been corrected, vitamin d was 23 - taking supplements — but no oddities

My doc has mentioned Small Fiber Neuropathy, but I wonder - would that cause a positive Tinel's sign? To me, it really feels like there may be a growth there, or something inflaming my nerves (Ultrasound showed a size increase in nerves on left foot). It's ONLY on my left foot - not my right.

Of course, I've been googling. While this has been an issue for nearly 2 years now, I see things like paraneoplastic syndrome, amyloidosis, myeloma... and I'm terrified.

Because of the progression, I'm just... feeling lost and scared. It's just one foot (and some diffuse prickling on the same left leg, front of the leg), it's not debilitating, but I worry it may become so.

Does anyone have any advice? Support? Thank you so much.

Last edited by gailveronica; 01-29-2021 at 12:38 PM.
gailveronica is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Atticus (02-01-2021)