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Originally Posted by Atticus
Hey Leeds Lad,
Thanks for the update, often wondered how you were getting on. Your description of your symptoms and treatment has been comprehensive and very useful. Thanks for sharing.
My symptoms started early January 20, kind of peaked in March /April 20 and subsided in May 20. I'm still not 100%. I have insignificant numb toes and my legs and arms can ache like I've done v heavy exercise instead of light from time to time. And my hands can later feel pain from carrying a heavy shopping bag etc
I've had one nerve conduction test last summer that was negative a MRI scan of brain and neck, in the Autumn, negative, a telephone appointment with a Neurologist and a Covid cancelled face to face appointment on January 18th 2021 with no new appointment allocated. Although never diagnosed I believe I had/have alcohol induced PN and I stopped drinking alcohol on February 2nd 2020 with a couple of lapses. I have taken no medication.
I have pursued a whole food plant based diet... orthorexia nervosa ... an obsession with healthy eating, but it has been the cessation of alcohol that has undoubtedly helped me most.
Are you taking any meds currently? Which meds do you feel have helped you and which ones haven't?
Atty
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Hey Atty
I do think there is something to be said for low inflammatory diets- I think they will make some sort of difference, so glad the alcohol absence has helped you.
As you'll know, I was prescribed Gabapentin most recently and I took that for about 2 months before stopping. No meds I ever took made a discernible impression on my symptoms and I am fairly sure they just did what they want regardless. I am wondering whether they were less effective as I didn't have any of the typical nerve pain sensations or anything like burning etc.
In terms of other stuff, I was on all the supplements at the start (I think I listed them out previously) and then just naturally stopped as they all ran out - I am not sure whether they did make a difference or not. Maybe it helped with the position I am in now, or perhaps that would have happened any way. In either case, I think marginal gains in any case would be helpful.
At the moment, the only supplements I take are Omega 3 fish oil, Magnesium, R Lipoic Acid (mainly as I have them left, but will stop after) and B12.
I think anything that promotes healing and/or regeneration is worth trying, as are things like low GI diets, yoga/stretching and acupuncture. I did it all
P.S. I tend to get muscle aches and sometimes mild/dull shooting pains in my hands and elbows. I have no idea whether it's related to this thing, or perhaps repetitive strain from working at a desk for so many hours, but I've found Magnesium gel application directly to those areas has helped!