It is not unusual to have difficulty being diagnosed. Some doctors are incapable of giving a disease a name without overwhelmingly positive test results.

In my opinion, your husband likely has MG. If so, he will need to be seen by more than a PCP. I would suggest you go see or get a referral to a neurologist, preferably one who specializes in neuromuscular diseases.

The bulbar weakness is very concerning and dangerous. Make sure everyone knows how to do the Heimlich maneuver, including your husband in case he needs to save himself.

Keep fighting!