Hey Sean,

Welcome to the forum. Your symptoms sound awful. Heartbreaking. Have you had these symptoms investigated? I would be tempted to go to A&E and describe your symptoms to them. At the very least get an eye test. An OCT will give a 3 D view of your optic nerve head. Raised intercranial pressure can often be detected by this means. Most Specsavers have an OCT and don't charge for it. Though an Independent Optometrist, at greater expense, will have more time to deal with you. Both are likely to refer you, urgently, for further investigation given the severity of your symptoms.

Take care mate,

Atty