Hi Atticus and Agate,

The doctors I've been seeing throughout the years have been doing very little to investigate my condition within 5 years I must say. I did have a CT scan a few years back which was normal. Then I went to a neurologist who done a quick physical examination which was normal of course. Then I got sent to a psychologist who just wrote me off as having a somatic disorder, despite reporting these head symptoms to him. And it's taken around 6-8 months or more for each referral or specialist appointment which is the main reason I've gone 5 years with little investigation being done and no progress made. And in between my ridiculously long waits for specialists who turn out to be no help to me anyway, I'm seeing GPs who either brush my symptoms off or assume that I have an illness like ME/CFS, Fibromyalgia etc and act accordingly. The last one I seen recently suggested that I went to a pain clinic for these head pains that I speak of and didn't take me seriously at all when I mentioned having suspected IH.

It's beyond frustrating to say the least and just want to find a way out of this state of limbo I'm in. I was 22 when this happened, I'm 27 now and feel like I've lost out on a good part of my life because of this. And I reckon it could have taken months, not years, to get to the bottom of this.

I am now waiting on word to seeing another neurologist (which my GP can't promise anyway, since I've seen a neuro previously), but I'm thinking now that I probably should just go to the A&E with these symptoms and see if they would be willing to do a lumber puncture.

I'm due an appointment with my optometerist just now, so I'll definitelly ask about getting an OCT done. I imagine he would refer me right away if I report these symptoms to him. I clearly have some issue with my peripheral vision going blurred and feel as if in looking at the world through a pair of steamed up goggles I can't take off. Since my vision is still 20/20 however, I'm not sure if this is eye or brain related, hopefully I find out soon.