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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Pulmonary testing issues
Hi . Tried to make this bold so I could see it better. So that only works for reader. I need stories and info on being off Mestinon for these tests. The problem is I need the full picture since I am so much worse but can’t go off and most likely outside a hospital now as body such a noodle without it. Plus the big risk trying to walk in that state. For unknown reason reasons local pulmonologists don’t take being off Mestinon as necessary for accurate test. My neuro knows better but doesn’t run the tests and is a junior doc to the very senior pulmo. Now Mayo Clinic MINESOTA does ask all meds off and no stimulants like coffee. Etc. Personally If I am off 2 or 3 days from Mestinon they would get the most accurate read. My daughter got annoyed with me having another doc ask about sleep study but she was new and it was in record from last doc. So it won’t be accurate if I am on Mestinon and if I am off for even 12 hours I have real concerns that a sleep center would handle me safely. Thank you for any info back on this. Sculptor44
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