Hi Foodguy, and WELCOME!

I can understand how annoying it must be to have been through so many tests, etc., with no answers.

This is what I would do in your situation, but bear in mind that I'm just someone with MS who doesn't know a lot about neurology in general.

I would look first of all at every medicine (rx AND OTC) or supplement I'm taking. I'd try cutting down on them or cutting them out (one drug at a time) to see if one of them might be contributing to my problem.

I'd also look at my diet. Is there some food or beverage that might be the problem? Again, you could try cutting out first one and then another and give each trial enough time so you can figure out if you're improving.

Then I'd look at my activity. Is there something I'm doing on a regular basis that might be causing my problems?

For instance: I've been plagued by a weird pain in the neck/back of the head for some months now. It could be due to a drug I've recently started taking again after not taking it for 10 years. But it's gone on for so long that I've looked at my activity and realized that an inadequate glasses rx I got last summer might be part of the problem. Because I'm not seeing well, I keep straining to see better my craning my neck forward. This is exactly the kind of position that brings on more of this pain. So my attempted solution will be to mention this vision problem to the eye doctor and see if I can get a better glasses rx.

This is the kind of analysis I would do. In other words, instead of thinking in terms of a disease you might have, look really closely at every aspect of your life.

And are you getting adequate sleep? Poor sleep can cause a whole boatload of problems.

These are just some thoughts about possible avenues to explore.