Hi Robert and Kirsty, I was diagnosed with LAS in Oct 2014 after a cardiac arrest causing a hypoxic arrest. Was put into induced coma for 12 days. Tried to bring me round but kept seizing violently so sedated again. Was in hospital a total of 12 weeks. Luckily the neurologist at the time spotted the signs and symptoms and diagnosed LAS. Physio and the right combination of meds in each case is vital. Unfortunately not a lot is known about our rare species and I have found we have to find our own path and fight for what we believe is best and works for us. **