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Legendary
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Join Date: Sep 2006
Location: 16.9203° S, 145.7710° E
Posts: 11,010
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Legendary
Join Date: Sep 2006
Location: 16.9203° S, 145.7710° E
Posts: 11,010
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Hello Sculptor,
I suggested finding an advocate in one of the threads. I live in Australia, so am not familiar with your system there, however, I have just been searching for information specifically related to MG and found a little information.
US State MG support groups.
Myasthenia Gravis Foundation of America > MGFA Support Groups
Patient Advocate
A national 501 (c)(3) non-profit charity.
Home - Patient Advocate Foundation
Case management services
Case Management Services & MedCareLines - Patient Advocate Foundation
Contact number
Contact - Patient Advocate Foundation
(they're in VA)
Johns Hopkins - The Power of a Health Care Advocate
The Power of a Health Care Advocate | Johns Hopkins Medicine
It talks about paid advocates. Usually professionals i.e. nurses, social workers, or others who help a patient deal with the health care system, dealing with doctors and insurance etc..
Hopefully someone from the USA may have more info. too.
Take care there
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