Hi all- Found this forum yesterday and have been reading almost non stop.. Back in 2004 I suddenly had calf cramping along with muscle twitching in my left calf. I thought it was because I had just gone on a run . The cramping was excruciating and lasted days and the twitching was non stop. Had an EMG which was normal.
Fast forward to 2021 and all these years my calf is still twitching but over time I also developed pain which I describe as shooting-burning- stabbing only in my left calf . It feels as though hot fireworks are going off continuously . It just recently started in my right calf after all these years. My neurologist has been useless and he is also a sleep specialist who had me do a
Sleep study (my third one) because he was convinced I had RLS (nope).
Anyway along with the constant pain my sleep is totally unrefreshing even with medications -Klonopin and Neurontin. I wear a sleep tracker but not sure how accurate it is.
It shows I only get deep sleep in increments of 10-15 minutes 3 or 4 times a night.
Does anyone else have totally unrefreshing sleep? It’s almost as bad as the pain to wake up feeling like this every morning.
I am due for a biopsy in August to figure out of I have SFN . I am not sure what they would do differently if I do.
Sorry so long but my sleep has become worse over the past six months and I am desperate .
I wish I could sleep standing up because I don’t feel pain when I walk or stand…