Quote:
Originally Posted by kinjo28
Hi all. I’ve just been diagnosed with TN. Trying to gather information on easing the symptoms. From what I’ve read already my case seems pretty common with others here. I first thought I had a sinus infection. I went to my gp and he prescribed me antibiotics. I woke up at 3am and felt like someone was digging my molar out from the inside with a hot ice pick. Pain moved from my teeth to my sinus. All on the left side of my face. I hopped on google after the pain subsided. I saw that it could be my teeth so I got an appointment that day. I got X-rays . They didn’t see anything and I was told that the cleaning would be 800. They said it was most likely a sinus infection. I went back home that night I gargled salt water and holy crap i triggered that pain like no other. I got it ! It has to be my teeth. Next day I was in the dentist chair. I was all good and numbed up . In the middle of the cleaning I got another pain attack. The dentist was literally jabbing all my teeth saying it can’t be your teeth. Man I didn’t know what was going on. In fact after the cleaning I went to my car and broke down in tears. Which isn’t a thing Ive done since I was a little kid. I told my dr the same thing I’m telling you now and he told me about TN. I still can’t say it right. This was about two weeks ago. Feels like one long *** day. Have no clues what caused it . I was in a bad car wreck when I was in my 20s , I been kicked in the head a lot from sparring and tournaments before that. [emoji2369]who knows. I’ve been given tegrotol idk how long it takes to work. My pains been pretty mild since that dentist office. Had a few bad flare ups. Shits changed my life . Looking forward to reading everyone’s posts thanks for reading.
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Hello,
On the note of relieving some of them symptoms… the only thing that helped me before I under went MVD surgery 2 weeks ago was steadily increasing doses of gabapentin. I did opt to do the MVD surgery because I am younger (29) with low risk for surgical issues. My cerebral artery was pressing against the maxillary branch of the Trigeminal nerve. My worst pain was right at the bottom of my nose on the right side. Right where the dip is where ur nose meets ur cheek. Felt like someone was taking a hot ice pick and driving it into my face. Went through a bunch of crap from different drs and the ER saying “tooth issues” and “sinus issues” ect. Finally an Ear Nose and Throat dr sent me for an MRI. Then sent me to a neurosurgeon. There are different options for attempting to lessen the pain. But from all the research I have done there is no “cure”. If you are a good candidate for the MVD surgery then it can give you most relief for usually 10-20 years. Most other options the longest I saw were 3 years. Definitely see what option would be best for you. So far I have been out of work for 2 months and thankfully my job allows me to do that because I will be out for about another month recovering. The mvd isn’t without its own pain and challenges. I won’t lie I’ve had a couple days that the headache rallies up there with the pain of a TN attack. And you def need someone at home to help u minimally the first week home.