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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Pulmo appointment was worse than I hoped for perhaps not than I expected. I think I can be too understanding at times. Had a Pastor who said I had the patience of a Saint. There is a local neuro who is not a muscle neuro tho did find my brain lesions. But he also made it his business say I wasn’t as bad physically as I said I was. This guy never did a full neuro exam on me. Also he tried to do a lumbar puncture on me in his office tho weren’t near a hospital in event of a problem. Mayo had tried to do one and the first doc backed out when he realized my breathing can’t tolerate lidocaine. Other staff tried to do it there at Mayo when I said it was ok to do no pain meds as I have so much loss of feeling. They tried for an hour and couldn’t get thru. I stopped the local neuro and said at the office wasn’t gonna work. He was very angry. But angry or not knowing he had a watered down vision of my symptoms I couldn’t trust him . I confirmed he was doing this thru an MD I did cognitive testing with. I was straight with her and said I think he is misleading doctors. She said yes he is gaslighting you. I had a pretty darn good family doc for 20 years. He acknowledged my MG. He retired about 7 years ago and I have bounced around since then. The gaslighting cost me one of the better ones. At least it seems my daughter realizes we need the neurologist at Mayo Clinic. Sculptor 44
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