Holy sm9ke. I hear you with all the specialists and tons of diagnosis. I want through that this year and gave up. I went back to my Chinese acupuncturist. She is awesome, knows exactly what's wrong and tells me my part in the process. Starts with diet and getting GI right. If you find a sore spot on your head, rub it down. It's going to hurt. Keep after these, they move around. Acupressure. Recommend acupuncture for you, your nerves are in distress. Be well soon.