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Old 10-01-2021, 02:00 PM
jelinx jelinx is offline
Junior Member
 
Join Date: Aug 2020
Posts: 17
3 yr Member
jelinx jelinx is offline
Junior Member
 
Join Date: Aug 2020
Posts: 17
3 yr Member
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I feel ya. I am just checking back on this site for the first time in months. I had a similar experience in April 2020. Prior to this I had tingling in my heels for a little less than a year. Then after a few days of buzzing deep in my groin, below my genitals, I suddenly had full blown sensations over my entire body. I saw a local neurologist a couple of times over the next 3 months. THen I finally went to a specialist in Jan 2021. I had a skin biopsy, nerve conduction, multiple blood tests. NOTHING could be found. The biopsy showed "axonal" swelling. On exam, my sensation tests, pin prick tests, vibration tests were essentially normal. I feel no weakness. I am 2 years since the prickling in my heels and a good year and a half from the full blown body wide sensations. They put me on nortriptyline and GABAPENTIN (only 300 mg/day). I am maybe slightly worse...the sensations are not more intense, just more regular and simultaneous. I even get sudden irruptions of red patches all over my body. Sometimes my skin turns mottled, or red from pressure that it never did before. Stress definitely makes me notice it more and if I let it, drives me crazy, but I don't think stress makes it occur more...if that makes sense. If I am worse, it is only slightly...it's hard to know. I still get wicked depressed over it. I will see the neurologist for a follow up in Nov 2021...but deep down I believe I will just have to learn to accept this. AT the last appt, the neurologist said it could be SFN, but at a level below what their tests can confirm.
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"Thanks for this!" says:
Atticus (10-04-2021)