Quote:
Originally Posted by Sandoggie
So sorry you are suffering. Forget Western medicine. I can tell you it's trying to spread. The doctors know nothing and will refuse to provide pain relief.
** find out what you need to do to get pain relief. I'm screwed, I've seen 18 doctors all were worthless regarding my issue. Diet is essential. Stop eating meat, fish is OK. No butter or dairy. No sugar. No food that is frozen, in a box or can. Organic is preferred. Best thing you can do is see Chinese acupuncturist. Save your money go to Italy for neridronate infusions. I was in wheelchair (left foot leg +right foot) and can walk now. Happened 2 months after returning. Diet is from Italian doctor. Treatment $14,000 + airfare. Contact Medical Tourism of Italy. They patented their drug neridronate which works. Food and lodging included + interpreter and ride to clinic from hotel. It was spreading and if it were to get in organs the next thing for me would have been suicide. I have hope now and the rest of my life to pay off debt. Do it now before it gets worse. Best of luck, feel better soon. S
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I doubt changing what you eat will do a thing for this type of pain. Please don't spread these kinds of things. RSD is a serious condition.
Bisphosphonates are also seen as a means to combat recalcitrant RSD here in Belgium. But you need to go to a rheumatologist.
Just go see the "right" doctors, neurologist, rheumatologist, pain specialist
I saw a lot of different doctors as well; key is not to give up. I am sure if you contact a support group (rsds.org) that they can provide you with a couple doctors that *know* this condition inside out.
No reason to suffer in silence; no reason, at all!