View Single Post
Old 11-26-2021, 11:53 PM
tied's Avatar
tied tied is offline
Member
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
tied tied is offline
Member
tied's Avatar
 
Join Date: Sep 2006
Location: TX
Posts: 507
15 yr Member
Default TN and Pleurisy

I have been diagnosed with TN and pleurisy too. I feel like a rare patient, in that I feel like my TN is caused by salivary gland issues that were caused by radioactive iodine treatment for Thyroid cancer. Unlike others replying to this thread my doctors don't help or support me in the least for my TN. I think they could, but it would take them longer than 15 minutes per visit and to coordinate with an ENT specialist familiar with RAI. in short I feel like I have slipped through the medical cracks. Like burnt marshmallow I have developed my own coping mechanisms. One thing I do is hold that side of my face immobile. You can actually see this in photographs of me. The other strategy I hit on is to go to sleep on my painful side. When the muscles relax I get a rush of spit that's been trapped up there all day. This only happens once I drift off to sleep. When I wake up on my wet hanky, I then sleep on the slightly more comfortable side.

But concerning the pleurisy, I think it really sucks. Apparently I made it act up by getting the Pfizer COVID vaccine booster. Still trying to learn some more coping mechanisms. As usual there is almost nothing medicine can do for it.
tied is offline   Reply With QuoteReply With Quote