Hi ILostMyPhone,
Welcome to NeuroTalk Support Groups.

I'm sorry you're in so much pain. I don't know if you've had any surgery at some time for your TN (e.g. gamma knife or otherwise) or if you have any other neurological conditions.

You mention not feeling hot water, so wonder if you have neuropathy? Is it just your hands that can't feel the hot water or is it all over?

The repeating phrases sounds like Palilalia. Do you have access to a neurologist, neuropsychologist or at the very least a speech pathologist?

You also describe quite severe sounding roller coaster with the crying outbursts from having so much pain. Have you looked up "pseudobulbar affect"? Does that sound similar to what's going on for you? If your pain and stress levels are lowered you may find your Palilalia and emotional rollercoaster settles down.

If I was in your situation I'd keep a daily symptom diary and see my doctor for a referral to a specialist immediately. You don't mention any tests or doctors you have seen specifically or how long this has all being going on.

I don't even have Trigeminal Neuralgia so I can't address that at all I'm sorry, however I read your message and those few things stood out for me. I hope you are able to get some real help soon. I know it's such a terribly painful condition.