I only noticed your post a few days ago; in the United States there are medical doctors who specialize in Amyotrophic Lateral Sclerosis - in all likelihood there are some in the United Kingdom also (although the most similar prognosis is Motor Neuron Disease). Amyotrophic Lateral Sclerosis patients here will likely tell you if you are not talking with specialist you are likely wasting your time if you have Amyotrophic Lateral Sclerosis . . . same may be true of Motor Neuron Disease. The staff at the Motor Neuron Disease Association undoubtedly know the symptoms . . . while some correlation exists between the symptoms you have mentioned and those of Amyotrophic Lateral Sclerosis, alternatives remain possible. I strongly suggest you obtain appointment with motor neuron disease specialist in the United Kingdom and facilitate their independent appraisal.
let us know what develops!