Hello,

I’ve been looking through this super forum for a long time now.

I’ll try to keep this as short as possible… Basically I’ve had for at least three years now pain in my arms, chest, shoulder blades, neck front and back (and some head/facial pain too). This is on both sides of my body.

It has made me disabled, I can’t pick things up, push or pull things or lift my arms up without pain. Rolling shoulders forward or back hurts too.

The pain is particularly bad though when I tilt my head downwards in combination with arm movement. For example, to look down and pick something up off the floor. Even looking down without arm movement triggers pain. This means I have to keep my head In neutral position, e.g. central, and slightly retracted back all the time.

It has been a nightmare to get a diagnosis. I have been told I have functional neurological disorder.

The only way to ease the pain is by doing neck stretches, e.g. tilting head upwards, Ear to shoulder, and head rotations. And shoulder shrugs have helped.

tests I have had are as follows: chest x-ray, chest MRI, neck MRI, brachial plexus MRI, chest ultrasound, brain MRI, two shoulder x-rays, nerve conduction test. Nothing significant found.

I haven’t had any accidents. Worked at a computer for 10 years previous and slept on stomach with head turned left due to abdominal pain (endometriosis).

What I would like to know is, is this similar to your symptoms? And are they made worse when you tilt your head downwards? I hear a lot about TOS causing arm pain but I want to know if head position affects it too.

I would also like to know if there are any further scans I could have that could help diagnosis?

Thanks for reading :-)

Hannah