Hi. I've been diagnosed with white matter on the MRI. The specialist said it was white matter disease from micro blood vessel constriction, but did not give a name (as with others here). He had it himself. So, I was very fortunate, because in Australia, they tend not to diagnose stuff like this and instead think the worse. The hospital neurologist was neurotically quickly looking for other unrelated things silently, and having not found anything he wanted to find, totally missed it and didn't want to do any more. I had to go to another city to find another neurologist, and he missed it (hardly anybody in that city either). After a lot of cognitive loss, I went to a doctor in the capital, who referred me to the specialist. But many years of decline.

I'm looking for support groups in Australia and North Queensland, treatment and support?

I've had some other stuff interfere with treating the white matter to hold it back, over the last couple of years. I am waiting for a very long time to get to see the hospital neurologist again, who is just leaving me despite the decline. I was warned not to let it get any worse by the specialist, as I was on the border of it becoming bad. I can only type clearly, because I was fortunate to be very cognitive before, and typing now, just doing it on reflex, not thinking very much, to avoid the damaged areas. But, I am having some regression and it's hard to read at the moment, so I am finding it hard to read through things.

It's a nightmare, as it's coming on top of other things. Something had to be done to support people properly.

I'm going to outline my experience. In my medical history. ASD, Tourette's, B12 issues, and other nutrients deficiencies. I then caught something which produced ME. However, mid last decade, I got a tick bite with bright red circle around it. I then got a lot sicker. However, I found taking vitamin C affected it, and salt, and high doses the better. I've always had skin issues since young, where no wheat products and vitamin C helped it (what else I don't know). However, a few years ago, there was a parasite infestation here, and I developed ghastly lesions over my skin, and internal infestation, and a lot of decline again. These all have their own comorbid conditions, which are now largely completely subdued when using matching nutrients. The tick bite looks like the start of the major cognitive damage, but also the B12, zinc and B6 etc, and demyelination issues (ASD and ME). People with these tick issues (and some other insects) are associated with white matter. It's become a real struggle.

Thanks.