Quote:
Originally Posted by Wayne M
Thank you Agate,
Unfortunately, where I live, the competent doctors tend to stay near the capital, a very long way away. The more bullishly conservative, or diverting, a doctor is the more they are over compensating. We often struggle to get competent specialists here, and have a number that travel from the capital or are attached to the hospital, with a private practice, resulting in long wait lists going into years, unless you pay private to see the same doctor, taking time off from them servicing the public wait list, and helping to keep out competing private specialists. A lot of the incentives to get better specialist from decades ago, were removed. Unfortunately, I now can't travel.
I have a close relative with MS, which I did a lot of research helping, which is how I realised I had been having similar symptoms. Micro blood vessel based white matter disease is mistaken for MS and Parkinson's. I had another close relative that had Parkinson's. Which makes me wonder (though ASD and ME cause this too).
Anyway, I see there is no subsection for other white matter diseases here?
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I don't see any subsection for white matter diseases here but then "white matter diseases" includes quite a number of more specific diseases (including MS traditionally). MS is by far the most common but the others might be regarded as more rare--and so you'd be most likely to find discussions of them here in General Health Conditions & Rare Disorders.
Have you tried doing a search here at NeuroTalk for "white matter disease"?
As glenntaj indicated in the previous post in this thread, when you have several things going on, separating out each one can be tricky. You might have some luck if you could figure out which white-matter disease you have when you have latched onto a doctor who can guide you.