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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Hi. So I got a copy of my Neurologist locally notes written for recent appointment. I had to find out how bad the bad appointment was. Doctor was angry in tone. In the 2 new diagnosis she discussed is arthritis related. She is shifting to things other than Myasthenia. So this week I am gonna see if she will write my next prescription for Mestinon which unfortunately I will need in about 30 days. First time in years I don’t trust that she will prescribe it. This is part of the fear I talked about since I saw her. My daughter is kinda in denial about where neurologist is at. At least the Neurologist at Mayo heard me when I said without my Mestinon I will be in a bed in a nursing home. She said ok stay on it. That was in 2017. I need to do a closer read on the recent note. I skim cause my vision is so poor. She did acknowledge my Restrictive Breathing disorder because I gave her copies of 2 tests a year apart. One says I need oxygen at home. Thank you for being here. Sculptor 44
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