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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Doctor taking away Mestinon!!
So this will be my job for the coming months, finding a way to keep my Mestinon. This drug is more of a life line than ever!! I went online this morn to update what I know about my neurologist here at home. So two things. She will take Mestinon away at end of 3 months given she is already distorting symptoms and the facts on me to fit her needs not mine. 2nd my local original pulmonologist is the only local doc that may be able to get her to at least give me more time. I estimate 6 months to at least get to Mayo neuro and his team so I can get prescriptions thru him. My youngest daughter does this. Where my neurologist is denied she has Epilepsy and sent off cold turkey off seizure meds. She was seen by top Seizure doc at Mayo who diagnosed her unique Seizure issue and does her meds. 3 years ago my Cardiologist said I do not have cardiac issues I have severe Myasthenia Gravis that needs bigger treatment!! But she said you need a better neurologist at Mayo. Sculptor 44
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