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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Talked to my daughter today and she is firm in not believing my neurologist would drop my Mestinon in 3 months. She said it would be cruel and awful. She said she needs a direct statement from her nurse or her. She said she wanted a letter but I told her why that is A very bad idea. I have 2 other doctors there that are more Senior including my pulmonologist.. I am going to call my new helper tomorrow to discuss situation. I will try to meet with her soon to see if she has some ideas. I recalled in 2008 I lost my job. Because they weren’t willing to consider being more creative and consider my quality of life. They just patted me on my back when I was to be discharged and said oh well you don’t need to work. And no I am not wealthy so that really was weird. I have lost so many things over the years because of their ‘so what’ attitude. Sculptor 44
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