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Legendary
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Join Date: Sep 2006
Posts: 10,984
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Legendary
Join Date: Sep 2006
Posts: 10,984
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Sounds as if you had a very difficult day.
Do you mean that you're too exhausted to talk at the end of every day or only on the really busy, difficult and exhausting days?
Hopefully someone who has MG will respond with some ideas. I had a few ideas to help but don't know if they're truly helpful or not. Let us know more if you need us to find something specific.
The only thing I can think of is resting more during the day and making sure you get good night sleep.
Try to get others to understand that you do better earlier in the day and maybe only schedule appointments or people visiting to early in the day.
Tips for Living Daily Life with Myasthenia Gravis | MGFA
"conserve energy"
"don't stand when you can sit"
"don't sit when you could be laying down"
"modify consistancy of food"
"schedule busy activities early in the day"
Effects of MG on voice, speech and swallowing
Talks about exercises to help with dysphonia or dysarthria and getting help from a Speech Pathologist.
Keep the environment temperature regulated. Not too hot and not too cold.
BTW, I'm on a mac and if I have difficulty reading some sites, I just use touch gestures on the touchpad to magnify.
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