Anyone read this and have any ideas?

Since posting my condition has continued to slowly worsen. It's difficult to quantify exactly where I am in terms of mobility and fitness. I can still walk normal distances but am getting very tired and struggling when going up hills in a way I didn't before. My swallowing is still slowly worsening but food can go down. Speech is worse than before - this is new - but still sounds pretty normal when I talk for short periods. I have to clear my throat an awful lot though. My arm muscles have weakened quite a bit so they now shake, like I'm doing a hard rep at the gym, every time I put even minor body weight on them, I get a burning sensation (like when working out) and quick fatigue while doing things like typing. I am having more and more difficulty carrying things like heavy plates of food.

I continue to have other issues, including core weakness, facial muscle weakness (this has got pretty bad now) and what appears to me, and I really am certain of this, to be muscle wasting all over my body. My hands have recently wasted out quite a bit, making my tendons much more prominent than they used to be. The list goes on.

To repeat, does anyone have any ideas what could be causing all this? The only thing that jumps out from the literature - and from reading lots of anecdotal accounts - is ALS. However, while a GP worried I might have this, an ALS specialist recently told me he could see no signs. Could he have made a mistake? I am an unusual case in that my symptoms were triggered by a reaction to medication which also caused changes to my skin and muscle texture which make wasting more difficult to spot in me than the average person - as the skin hangs puffily.

Oh, and I should add, I can also no longer tap my feet in quick time. It feels like a muscle has just disappeared and can no longer vibrate quickly on my right foot and my left big toe has pretty much stopped working (this has been a problem for a while, I just haven't mentioned it because frankly, I've had issues with so many parts of my body that I struggle to include them all!).

Thank you.