Hi, I'm glad I found this forum and am hoping this will help me out with my condition. I had a Roux-en-Y in 2002. I was diagnosed with Vit. B12 Deficiency in Feb. 07, which, I found out later it, I was deficiet for over 2 years time. I was put on Cobalamin injections once a day X 5 days, then once a week, then once a month. This has been increased to every other week. I also take the Methyl 5000 mcg SL tabs twice a day for supplement, which has helped tremendously since beginning.
At this time, I am experiencing a LOT of CNS problems and would like some input for some of your members. I am especially needing this input as I have found many of the "specialists" are way behind the times with this syndrome. I cannot find a specialist who knows how to treat me and am developing more and more symptoms, thus feel emotionally and physically like I am slowly going down the 'tidy bowl drain'..... I don't want to end up paralyzed,which I know can happen...you see, I am a RN with 2 Master's degrees....and even I can't find the appropriate doctors.....Lord help the average citizen. This has been an eye-opening experience for me.... I have an array of symptoms that hit me everyday, sometimes these 'come and go' when the day is a bad day, like when I am extremely tired out, as I am still working full time and the ward/job is very physically tasking:
- loss of appetite (I never thought I would complain about this!)
- extreme and overwhelming fatigue
- horrible left arm pain, with marked weakness
- when extremely tired, the other extremeties also begin having the same pain
- Weakness
- Cognitive 'fogginess'
- Loss of memory
- Tinitus or ringing in the ears w/documented hearing loss
- Tingling in the hands and feet
- Flu-like achiness
- Loss of Coordination/Dizziness
- Depression .....go figure!
It will be a Blessing to have the emotional support from others who have experienced the same symptoms, while I would never wish this on my worst enemy, at least they would know it's "not in my head" and I am making it up )
Please excuse my sense of humor, by the way, it is my coping mechanism. The more I'm stressed, the more it flies! My motto has always been:
If you don't laugh at life, life will laugh at you!
and hey, I'd rather be the one laughing!
Nice to 'meet' everyone!