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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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It is more difficult to do daily tasks so getting here is still not happening as usual. It seems clear that Gammagard has affected my Renal system. But at same time I have turned a corner finding my breathing better allowing me to sleep longer and more comfortably. I called the neurologist I did a Televisit with in November at Mayo to report the Gammagard and generally declined status. I got a call back same day. I tried to push what happened a year ago when I was was so much worse I collapsed and had to come home before testing. I need to add here that I didn’t agree with the path that appointment was gonna take me and I was too sick to try to fix it. My daughter was scared and furious. The pulmonologist a year ago at Mayo was not my original one. While new guy gave us important information he didn’t interview me. He was very disrespectful. Anyway I have to fix the mess from last time tho someone at Mayo gets it as I was changed to a new Path with this current neurologist. Sculptor 44
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