Welcome, MaryCarol!
Do you know when you got the Rocky Mountain spotted fever? It has to have been through a tick bite. If you've had it for quite a while, untreated, it seems to me that your symptoms might be connected with it, as your neurologist has indicated.
The usual treatment for RMSF is doxycycline. Is that the treatment you've been getting?
Good luck with the appointment on Wednesday. I hope you can find some helpful answers.