20 year ago I went to a Neuropathy specialist in Virginia. Topamax he said regrows nerves. borage oil, Alpha Lipoic. Extensive testing. Nothing happened. I tried Sanexas and it did not work for me. I tried Hyperbaric Oxygen Therapy, and it did not work. GSE, ALA, Primrose Oil, Fish Oil, Benfotiamine. Chiropractic Neuropathy Specialist, Gentle Exercise, Gabapentin, Lyrica, Low Dose Naltrexone, Oxytocin (the love hormone) and acupuncture. The line I get whenever I don't get results is: You are just not responding to treatment. Some patients will say I am living with the condition, but I sort of feel like I am dying from the condition. It often feels like torture since it moves around and I never know where it will hit next, but it will, and it never stops getting worse.

My condition has just been a revenue source for many years with various practitioners. Now the symptoms are stabbing pains in much of my lower body into the abdomen, thighs, buttocks, back, hands and arms and groin. It started in my feet 20 years ago and about 3 years ago started spreading rapidly up the body. My blood sugar has been pretty good lately, but while younger, not so.

As mentioned before, it is my goal to educate people on all this. When I had my appointment with the Neurologist, he denied that any of my questions had any validity. To say now that it is Fibromyalgia and we don't know what causes it, is too simplistic and not realistic, in my opinion.

Now my PCP is saying I should go to therapy...