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DiMarie · 07-29-2007, 10:31 PM

Beverly you could echo so many of us. I knew my husband that long, we are a second marriage though for us. He lived next door to my grandma, My Mom and his older sister great friends. We re-met after divorces, dated for 13 years, engaged a year and will be married 15 in August.
We have yours mine and ours with children.

I was a success in law enforcement, I even was made a Chief in my small town. It is devastating for us to try and make it on my SSDI and 8 - 10 hours of work. My house ...I don’t even like to think about when my home use to look so super....He just like to have clean laundry, bed and food. Even a TV dinner if that has to be.

Thanks for asking about my DeAnne, sharing her story helps. But if things upset you it is not a happy ending.

I found the forum looking for information ten years ago when my daughter DeAnne was post op her first TOS surgery. She was injured at 16 and diagx and surgery at 19 with Dr Togut where we live near Wilkes Barre, PA.
She had a lot of scar matter then, and did a second time. She had a redo surgery to clean the scar matter that had entwined on the cervical nerves, it was wrapped in gortex/pericardial patch, Adcon-L pack to help prevent scarring and pain.

She had a body that had too much nerve damage and never could go back to work. Later in life, She relied heavily on me for her care as far as advocating for w/c battles and medical care. Cleaning for her, meals, she lived in front of me and I took her shopping, she took home food I made. I had her medications to make sure she took them properly.
She had been on Oxycotin, up to 400 mg a day....She became heavily addicted to them,. She was the first to admit they ruled ehr and she loved them...

She detoxed off and went on to try methadone, went into liver failure, then to Duregesic patches. She went up from 75 mcg 2 days to 150 mcg. She also ended up having psychological problems dealing with live. A broken engagement, living with nothing but pain, not having a group of friends, sleep to be rid of pain, pain keeping her from sleep....

She had battled with all her body energy, when that ran out her mind had to take over, when that was running out it was all soul power...eventually that must have been empty too.

De had spent a week in a behavioral unit near Phila. They were to help her regain life, to manage pain, potential for a pain pump to be free of taking meds. She could not manage to remember days or times. To avoid over dose, I had to give her meds....

When she cam home from the behavioral center they sent her home on ten medications...I noted and called, and enforced she could not take SSRI's she had psychotic events, seizures, and could not pee.....
I never knew they sent her home on SSRI;s, gave her haldol,

Saturday night about 11{30 PM I left her morning meds for her. I worked at 10:00 Am and she hated to come up and wake me for them...I waited until she fell asleep and took them down.
Sometime Sunday she passed away.
I found her when I came home from work. She did not call me all day as she normally would have and I was a mess to get home....

The coroners report said the Duregesic; combination of SSRI;s and haldol overdosed her. She was 29.
There was only her normal dose of Duregesic patches on her, but the level was elevated.....

My forum family here has been my God send for sanity, love and support.
Old friends new friends, all have such compassion.
I miss my daughter terribly, but who am I to have her living a live of pain . I only wish I could see her, talk to her.

De was like a poster child for TOS. She had it terribly bad, but always loved people and had smile and love. She was challenged with her mental issues, but would in a minute help someone.

Thanks for asking, time heals, so does sharing my daughter. Many gals here were like Aunts to her.
Dianne
This was taken our trip to Disney in October, the last picture I have of her.