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Old 11-04-2022, 04:53 PM
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agate agate is offline
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Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
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Hi, strizzlow20.
I'm sorry you've been having so many difficulties. It's hard to know how to treat the symptoms if you don't know the cause but you might find it useful to experiment with your daily routines and see if you can find any changes that will help you to feel better.

In other words, since it sounds as if you've been through many attempts at finding a diagnosis, maybe the way to go now is to give up on that idea and just find ways to do the things you need to do and want to do each day. It might mean changing your sleep schedule, or changing your diet, or changing your exercises, or at least finding out if there's anything that triggers your symptoms and then finding ways to avoid those triggers.

Even if someone came up with a precise diagnosis, many drugs for neurological disorders come with unpleasant side effects and some of them don't work well for some people.

You sound as if you're miserable enough just trying to get along in spite of the symptoms, and by now you'd like some remedies.

I can't suggest anything other than trying a few lifestyle changes but that method has often worked for me when it comes to MS symptoms. The changes had to be really drastic at times but the symptoms were drastic.

I hope that the doctor you are working with will come up with some answers for you, but in the meantime you might want to try to do what you can on your own to work around the symptoms--if you haven't already done that.
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MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
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