Hi there.
I'm new here.
I was diagnosed in 2015 with MMN
Originally misdiagnosed with something similar and told I had 5 years to live. Well anyway I told them they were wrong the next day, after praying to God for several hours through my tears during the night. Finally told I had MMN
I've been on ivig ever since.
I struggle mentally often with it, more so as the ivig begins to wear off. I stress about the future,. I was originally every 12wks, then 10, 9, and now 7wks, but even now I'm ready after 5, as I notice I'm needing to pull my *** up the stairs. I have also started to experience jelly legs now and then, and my ankles will just mis-step and my legs will just crumble beneath me, happened again today whilst out on a stroll. I'd literally just said to my daughter, hey my legs feel all jelly, then 2 minutes later my kept ankle just went, and down I did go!
This has knocked my confidence and added to my stress, especially as I've only just had my ivig on Monday and Tuesday.
Anyone else have similar experiences?
Thanks 👍