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Originally Posted by Wide-O
This. So much.
It should be a disclaimer on every post about PN.
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It is just a pitty doctors did not tell me all I have learned in the past year experimenting on my body and reading posts here. They did not care or have a clue, they just told me, go home, it will improve or not. Have patience! Great. When you have to live on Xanax that is a fine sentence to hear.
Quote:
Originally Posted by Wide-O
FWIW, I also have tinnitus since 2004. Same mechanism, isn't it? The last 2 years were a lot worse as medication (SSRI ...) turned it from "normal" tinnitus into full blown hyperacusis. Normal daily sounds drove me crazy at first, music was a no-no. For some reason I had an awesome month, and guess what... back to listening to music at normal volume etc. The power of the mind ...
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Sounds worse than mine. I can listen to music, but I figured out that certain speaker systems that go below a frequency lever worsen my tinnitus. I bought myself a high end system 20 years ago and had to sell it, as my tinnitus turned unbearable. So now I use a small JBL speaker for my home cinema and it is just fine. Also some earphones are too much, so I just use the plug in versions and that's it. I don't feel I loose anything. I just adapt to the situations and no worries.
Quote:
Originally Posted by Wide-O
FWIW, Covid has neuropathy as one of its many possible side effects (as it's a bloodclotting/arterial lining disease at first, preventing the much needed nutrition (B12 etc) to small fibre nerves first. (this last point is speculation on my part, but it would make sense.
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So I had the worst cocktail of neuropathy inducing beasts (COVID, Hepatitis E, alcohol). I am getting better, so there is light at the end of the tunnel.
I try to take neuropathy as belssing not a curse. I know it sounds crazy. Since I know it is stress sensitive. I try to avoid stress at all cost. Even if I am in a stressful situation i tought myself to calm down quickly and go on with life. In the long run nobody died of neuropathy, but you can die of stress. Same nobody dies of a good diet even when forced. Low sugar intake helps me to keep my body in shape. Also I do much more exercise as I figured it helps keep it under control. Yesterday after I sinned with Nutella, I went for a 60kms ride on an eMTB, the whole day was clean afterwards and during the ride. When there is no neuropathy, nothing can destroy my mood
Quote:
Originally Posted by Wide-O
Flare ups are very confusing - they make you think no progress was made, but if you really look back (sometimes taking notes every day or every few days helps), you will see you have come a long way.
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Exactly!