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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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I am back at this post because my symptoms are worse, my body has been in decline stronger since I moved into Assisted Living. I honestly am darn good at finding help coping. But having absolutely no control over the medical system that has decided I don’t get to be helped has me in my little apartment with my health failing faster. The first hours in the morning are the worse for being so so scared I find my body locked in tension even now I find my fists clenched at my sides trying to bear what’s going on in my chest, my breathing. Sitting in my chair I barely made it to counting off 30 minutes of my Mestinon kicking in and hoping for some relief. And then another 30 minutes so I can walk more safety. My daughter is trying to hire a person to take me to the doctor. Appointments. My daughter had to talk to the nurse here about a care document they produced that seriously misrepresents my status. She asked for a copy of that as we are asking for a correction. Sculptor 44
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